Promoting Awareness of RSD/CRPS in Canada

Memos and Bulletins
Public Comments Alternate email parc21026@yahoo.ca
Contact Information
Office Phone Help Line 905-934-0261 ext 2
E-Mail rsdinfo@becon.org
Website www.rsdcanada.org
Primary Contact Helen Small, Executive Director; Phone: 905-934-0261 ext 1
Alternate Contact Sharon Shore, Board Member; Email: sshore@rogers.com
Site Information
Located In Community St Catharines
Mailing Address PO Box 21026 
St Catharines, ON L2M 7X2
Physical Access Fully Accessible - support group meeting room
Agency and Service Names
Alternate Name PARC
Former Name Promoting Awareness of RSD in Canada ; Reflex Sympathetic Dystrophy (RSD Ontario)
Agency Information
Legal Status (50) Non Profit
Established 2002
Alternate Executive Willy Noiles, Board Member; Email: noiles.will29@gmail.com
Funding Donations ; Memberships are tax deductible. Donations are fully tax deductible. If requested, a card will be sent to the honoree or person in whose name the donation was made and the donor will receive the receipt and acknowledgment by mail. Donations help with the self-management program run the HELP LINE and maintain the website.
Description and Service Details
Description (Service) Provides information and education about Complex Regional Pain Syndrome(formerly known as Reflex Sympathetic Dystrophy) * offers support to individuals living with CRPS/RSD, their families and friends * PARC is a member of the International CRPS Recovery Study research team studying patients in 8 countries. PARC is a member of IRC, International Research Consortium. 
 
Services include: 
 
* information and education 
* support group 
* self-management program which teaches patients to manage their illness and problem solve daily issues in a positive manner 
* recommends health care professionals who treat and manage CRPS/RSD. 
* raises public awareness 
* raises funds for CRPS research in Canada 
* website offers information and advice on medical and non-medical issues, information on latest research and therapy/treatment options 
 
Facebook page: RSDCANADA:PARC.
Hours Help Line Mon-Thu 7 pm-10 pm or leave detailed message
Meetings Support group: First Wed of month at 1:30 PM 479 B Carlton St, St Catharines. The support group is for anyone with chronic pain and CRPS. Call for details and to ensure the meeting is on.
Areas Served Canada
Boundaries Support Group: Niagara Region 
Website/Information: Canada
Eligibility Ages: 18 year(s) and up 
 
Those living with CRPS/RSD, their families and friends. Offers support and information to patients, doctors and health care professionals.
Application Apply through Contact Form on Website * www.rsdcanada.org/parc/english/parc/contactus.php
Languages English ; French
Fees Membership ; Deluxe Membership fee $35/yr includes triannual newsletter, Survivor Club, ALERTS, DVD set member discount, Self Management Program for CRPS (free call) and more; Optional newsletter for only $25/year. Memberships are tax deductible.
Categories and Classification
Service Categories Disability Associations ; Health/Disability Related Support Groups
Other Details
Resources Flyer, digital CRPS articles, triannual newsletter, PARC POCKET CARD (wallet card), Stained Glass Art Cards,Living a Life in Pain (DVD).

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