IMPORTANT NOTE: On Jan 12, 2021, the Ontario Government declared a State of Emergency and issued a stay-at-home order, which came into effect Jan 14, 2021 and will last until at least Feb 11, 2021

Services listed below may be impacted in response to increased restrictions. Please contact agencies or programs listed here prior to visiting in person in order to receive up to date information on services

Barth Syndrome Foundation of Canada

Site: Mailing Address

Contact Information
Office Phone 905-873-2391
Toll Free Phone 1-888-732-9458
Social Media Facebook Facebook:
Contact Form
Agency Information
Description (Agency) A volunteer-based, charitable organization that works to find treatments, causes and a cure for Barth syndrome (BTHS).
Legal Status (50) Non Profit
Primary Executive Susan Hone, President
Funding Donations
Description and Service Details
Description (Service) On-going programs include: 
Science and Research 
* participation in helping to fund approved Barth syndrome specific research in Canada and worldwide 
Health Counselling 
* providing affected individuals and their families with information and emotional support to improve quality of life, advance treatments, and find a cure for Barth syndrome 
Health Information Activities 
* awareness program for the medical community and the general public providing information about Barth syndrome, diagnostic alternatives, and treatments to help patients get care unique to Barth syndrome
Hours Contact for information
Areas Served Canada
Eligibility Individuals and families affected by Barth Syndrome and those supporting the foundation's aims
Application No application required
Languages English
Fees None
Site Information
Located In Community Georgetown
Address & Map
Georgetown, ON
View Google Map
Mailing Address 162 Guelph St, Suite 115 
Georgetown, ON L7G 5X7
Physical Access Not Applicable - No physical address
Categories and Classification
Service Categories Disease/Disability Information ~ Mitochondrial Diseases ; Health/Disability Related Counselling ~ Mitochondrial Diseases ; Subject Specific Public Awareness/Education ~ Mitochondrial Diseases

Any omissions are unintentional and HIP disclaims any liability for unauthorized use or reproduction of any portion of this site. For a complete copyright and license statement please refer to our Terms of Use.