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Barth Syndrome Foundation of Canada

Site: Mailing Address

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Record #: ACT4120 Last Full Update: 09 Nov 2020
Contact Information
Office Phone 905-873-2391
Toll Free Phone 1-888-732-9458
E-Mail info@barthsyndrome.ca
Website www.barthsyndrome.ca
Social Media Facebook Facebook: www.facebook.com/barthsyndromecanada/
Contact Form www.barthsyndrome.ca/CommentForm.asp
Agency Information
Description (Agency) A volunteer-based, charitable organization that works to find treatments, causes and a cure for Barth syndrome (BTHS).
Legal Status (50) Non Profit
Primary Executive Susan Hone, President
Funding Donations
Description and Service Details
Description (Service) On-going programs include: 
 
Science and Research 
* participation in helping to fund approved Barth syndrome specific research in Canada and worldwide 
 
Health Counselling 
* providing affected individuals and their families with information and emotional support to improve quality of life, advance treatments, and find a cure for Barth syndrome 
 
Health Information Activities 
* awareness program for the medical community and the general public providing information about Barth syndrome, diagnostic alternatives, and treatments to help patients get care unique to Barth syndrome
Hours Contact for information
Areas Served Canada
Eligibility Individuals and families affected by Barth Syndrome and those supporting the foundation's aims
Application No application required
Languages English
Fees None
Site Information
Located In Community Georgetown
Address & Map
Georgetown, ON
 
View Google Map
Mailing Address 162 Guelph St, Suite 115 
Georgetown, ON L7G 5X7
Physical Access Not Applicable - No physical address
Categories and Classification
Service Categories Disease/Disability Information ~ Mitochondrial Diseases ; Health/Disability Related Counselling ~ Mitochondrial Diseases ; Subject Specific Public Awareness/Education ~ Mitochondrial Diseases

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