IMPORTANT NOTE: Services may be impacted in response to COVID-19 (Coronavirus). Please contact agencies or programs listed on this page prior to visiting in person to receive up to date information on their services (eg. wait times, hours of operation etc…).

Huntington Society of Canada

Site: Mailing Address

Memos and Bulletins
Public Comments Services altered in response to COVID-19 (Coronavirus) 
 
HSC office is closed until further notice. 
 
Staff are working from home and business operations continue. 
Please call 1-800-998-7398 or send an email to info@huntingtonsociety.ca if you require assistance.
Contact Information
Office Phone 519-749-7063
Toll Free Phone 1-800-998-7398
E-Mail info@huntingtonsociety.ca
Website www.huntingtonsociety.ca
Social Media Facebook Facebook: www.facebook.com/HuntingtonSC
LinkedIn LinkedIn: www.linkedin.com/company/huntington-society-of-canada
Twitter Twitter: twitter.com/huntingtonsc
YouTube YouTube: www.youtube.com/user/HuntSocCanada
Website Contact Form www.huntingtonsociety.ca/about/contact-us/
Agency Information
Description (Agency) A not-for-profit charitable organization which raises funds to deliver individual and group support services to individuals and families living with Huntington disease (HD) and to fund medical research to delay or stop the progression of the disease. The Society also works with health and social services professionals to enable them to better serve people living with HD.
Legal Status (50) Non Profit
Established 1973
Primary Executive Angèle Bénard, National Director, Family Services; Phone: 519-749-7063 ext 132; Email: abenard@huntingtonsociety.ca
Alternate Executive Jen Gulka, Family Services and Research Coordinator; Phone: 519-749-7063 ext 137; Email: jgulka@huntingtonsociety.ca
Funding Fundraising ; Donations
Description and Service Details
Description (Service) Services altered in response to COVID-19 (Coronavirus) 
 
HSC office is closed until further notice. 
 
Staff are working from home and business operations continue. 
Please call 1-800-998-7398 or send an email to info@huntingtonsociety.ca if you require assistance. 
 
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Online Resources 
* learn about Huntington disease, brochures fact sheets, booklets, publications and other HD related resources 
* Clinic Locator 
* Advocacy 
 
Closed Facebook Support Group 
* gain access to an active group of people in Canada living at-risk for, living with or caring for someone with Huntington disease (HD) 
* individuals in this group will be asking questions, answering your questions and sharing stories of hope and support 
 
At-Risk Online Support Group (currently being piloted) 
* support group for those living at-risk of Huntington disease 
* an initial step into virtual support, currently being piloted 
* a few different groups anticipated to begin following the completion of the pilot group and its evaluation 
 
HD Coalition for Patient Engagement (HD-COPE) 
* international collaboration between the Huntington Society of Canada, the Huntington Disease Society of America (HDSA) and the European Huntington Association (EHA) 
* formed to replace the current approach to incorporating the patient-voice in global therapeutic development efforts for HD 
* group’s role is to communicate the HD community’s experiences and needs to regulators, industry and researchers
Hours Not specified
Dates For upcoming events, see here
Areas Served Canada
Eligibility Individuals and families living with Huntington disease as well as the professionals and friends who support them
Application Online resources 
* no application required 
 
Support groups 
* see website for details
Languages English
Fees None
Site Information
Located In Community Waterloo
Address & Map
Waterloo, ON
 
View Google Map
Mailing Address c/o Huntington Society of Canada 
20 Erb St W, Suite 801 
Waterloo, ON N2L 1T2
Physical Access Not Applicable
Categories and Classification
HCSD Main Heading Disabilities
HCSD Sub Heading Disability Associations
Service Categories Disease/Disability Information ~ Huntington's Disease ; Health/Disability Related Support Groups ~ Huntington's Disease ; Internet Information Resources ~ Huntington's Disease ; Voluntary Health Organizations ~ Huntington's Disease

Agency Overview


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