Promoting Awareness of RSD/CRPS in Canada (PARC)
|Record #: NIA5696||Last Full Update: 20 Sep 2018|
|Memos and Bulletins|
|Public Comments||Alternate email email@example.com|
|Office Phone||Office Help Line 905-934-0261|
|Social Media||Facebook: www.facebook.com/RSD-Canada-PARC-150212265042156/|
|Primary Contact||Helen Small, Executive Director; Phone: 905-934-0261|
|Alternate Contact||Jean Pamenter, Board Member; Phone: 416-498-7622; Email: firstname.lastname@example.org|
|Description (Agency)||Advocates for people with Complex Regional Pain Syndrome|
|Legal Status||(50) Non Profit|
|Alternate Executive||Willy Noiles, Board Member; Email: email@example.com|
|Funding||Donations ; Memberships are tax deductible. Donations are fully tax deductible. If requested, a card will be sent to the honoree or person in whose name the donation was made The donor will receive the receipt and acknowledgment by mail.
Donations help with sending packages to patients, maintaining the HELP LINE and website. Donations help contribute to funding events.
|Description and Service Details|
|Description (Service)||Provides information and education about Complex Regional Pain Syndrome(formerly known as Reflex Sympathetic Dystrophy) * offers support to individuals living with CRPS/RSD, their families and friends * PARC is a member of the International CRPS Recovery Study research team studying patients in 8 countries.
◾ information and education on CRPS
◾ support groups
◾ self-management program which teaches patients to manage their illness and problem solve daily issues in a positive manner
◾ recommends health care professionals who treat and manage CRPS/RSD.
◾ raises public awareness of early recognition and diagnosis of CRPS
◾ raises funds for CRPS research in Canada; currently raising funds for Montreal Research
|Hours||Help Line Mon-Thu 7 pm-10 pm or leave detailed message|
|Meetings||The support group are for anyone with chronic pain and CRPS. Call for details and to ensure the meeting is on.|
|Boundaries||Support Group: Niagara Region
|Eligibility||Ages: 18 year(s) and up
Those living with CRPS/RSD, their families and friends. Offers support and information to patients, doctors and health care professionals. PARC helps parents of children with CRPS.
|Application||Apply through Contact Form on Website * www.rsdcanada.org/parc/english/parc/contactus.php|
|Languages||English - Website, Programs ; French - Publications|
|Fees||Membership ; Deluxe Membership fee $35/yr includes triannual newsletter, Survivor Club, ALERTS, Self Management Program for CRPS (free call) and PARC Forum. Optional newsletter for only $25/year. All mmberships are tax deductible.|
|Located In Community||St Catharines|
|Mailing Address||c/o PARC
PO Box 20032
St Catharines, ON L2M 7W7
|Physical Access||Fully Accessible - support group meeting room|
|Categories and Classification|
|Service Categories||Disease/Disability Information ~ Reflex Sympathetic Dystrophy ; Health/Disability Related Support Groups ~ Reflex Sympathetic Dystrophy ; Pain Management ~ Reflex Sympathetic Dystrophy|