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Promoting Awareness of RSD/CRPS in Canada (PARC)

Memos and Bulletins
Public Comments Alternate email parc21026@yahoo.ca
Contact Information
Office Phone Office Help Line * 905-934-0261
E-Mail rsdinfo@becon.org
Website www.rsdcanada.org
Social Media Facebook Facebook: www.facebook.com/RSD-Canada-PARC-150212265042156/
Primary Contact Helen Small, Executive Director, PARC; Phone: Leave message after hours
Alternate Contact Jean Pamenter, Board Member, PARC; Phone: Leave message 416-498-7622; Email: pamenter3@gmail.com
Agency Information
Description (Agency) Advocates for people with Complex Regional Pain Syndrome
Legal Status (50) Non Profit
Established 2002
Funding Donations ; Memberships are tax deductible. Donations are fully tax deductible. If requested, a card will be sent to the honoree or person in whose name the donation was made. The donor will receive the receipt and acknowledgment by mail.  
 
Donations help with sending packages to patients, maintaining the HELP LINE and website. Donations help contribute to funding events and research.
Description and Service Details
Description (Service) Provides information and education about Complex Regional Pain Syndrome (formerly known as Reflex Sympathetic Dystrophy) * offers support to individuals living with CRPS/RSD, their families and friends * PARC is a member of the International CRPS Recovery Study research team studying patients in 8 countries.  
 
Services include: 
 
*information and education on CRPS 
*support groups (in certain areas) or phone/email support 
*self-management program which teaches patients to manage their illness and problem solve daily issues in a positive manner 
*recommends health care professionals who treat and manage CRPS/RSD. 
*raises public awareness of early recognition and diagnosis of CRPS 
*raises funds for CRPS research in Canada; currently raising funds for Montreal Research
Hours Help Line Mon-Thu 7 pm-10 pm or leave detailed message
Dates All year round except for holidays
Meetings The support groups are for anyone with chronic pain and CRPS. Call for details and to ensure the meeting is on.
Areas Served Canada
Boundaries Support Group: Niagara Region 
Website/Information: Canada
Eligibility Ages: 18 year(s) and up 
 
Those living with CRPS/RSD, their families and friends * Doctors and health care professionals
Application Apply through Contact Form on Website * www.rsdcanada.org/parc/english/parc/contactus.php
Languages English - Website, Programs ; French - Publications
Fees Membership ; Deluxe Membership fee $35/yr includes triannual newsletter, Survivor Club, ALERTS, Self Management Program for CRPS (free call) and PARC Forum. Optional newsletter for only $25/year. All mmberships are tax deductible.
Site Information
Located In Community Niagara Region
Mailing Address c/o PARC 
PO Box 20032 
St Catharines, ON L2M 7W7
Physical Access Fully Accessible - support group meeting room
Categories and Classification
Service Categories Disease/Disability Information ~ Reflex Sympathetic Dystrophy ; Health/Disability Related Support Groups ~ Reflex Sympathetic Dystrophy ; Pain Management ~ Reflex Sympathetic Dystrophy

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