Neurofibromatosis Ontario

Contact Information
Toll Free Phone 1-866-843-6376
Social Media Facebook Facebook:
Twitter Twitter:
Primary Contact Sue Corson, Medical Liaison
Agency Information
Description (Agency) An agency in the 211 Eastern Region service area.
Legal Status (50) Non Profit
Established 1985
Primary Executive Sonya Corson, President; Email:
Funding Fundraising ; Donations - Charitable Registration Number: 119053775 RR0001
Elections Once every two years
Description and Service Details
Description (Service) Voluntary health organization offering support to people living with neurofibromatosis and their families * research support * information provision * development of local support groups * awareness events
Hours Telephone calls Mon-Fri 9 am-9 pm
Meetings Meets once yearly in the Greater Toronto area * Meetings are usually in the spring and include guest speakers and time to network with others with neurofibromatosis (NF)
Areas Served Ontario
Eligibility No restrictions
Application Call or email for an application
Languages English
Fees Membership - $10 per year * not mandatory for events (2018) ; None - for information by phone or email ; Method(s) of Payment Accepted - Cheque, Visa
Site Information
Located In Community Toronto
Address & Map
Toronto, ON
View Google Map
Mailing Address PO Box 91119 
Bayview Village 
Willowdale, ON M2K 2Y6
Physical Access Not Applicable
Categories and Classification
Service Categories Subject Specific Public Awareness/Education ~ Neurofibromatosis ; Voluntary Health Organizations

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