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Tuberous Sclerosis Canada Sclérose Tubéreuse

Site: Mailing Address

Contact Information
Social Media Facebook Facebook:
Instagram Instagram:
Twitter Twitter:
Primary Contact Karen Shulist, Co-Chair
Alternate Contact Anne Dorsey, Ontario Contact; Phone: 705-739-1271; Email:
Agency Information
Legal Status (51) Registered Charity
Established 1991
Primary Executive Cathy Evanochko, Co-Chair
Elections June every two years
Description and Service Details
Description (Service) Tuberous Sclerosis Complex (TSC) is a congenital genetic disease characterized by certain skin abnormalities and birthmarks, tuber-like growths in the eyes, the brain, and other internal organs, and varying severity of epilepsy and developmental delays * a voluntary nonprofit charitable organization dedicated to raising public awareness of tuberous sclerosis complex, encouraging mutual support between families with affected members and promoting research and education * run by volunteers, working out of their homes
Hours No regular hours
Areas Served Canada
Eligibility No restrictions
Application Call or visit website
Languages English ; French - Website
Fees None
Site Information
Located In Community Barrie
Mailing Address PO Box 35057 Essa Road RO 
Barrie, ON L4N 5Z2
Physical Access Not Applicable
Categories and Classification
Service Categories Subject Specific Public Awareness/Education ~ Tuberous Sclerosis

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