Barth Syndrome Foundation of Canada

Site: Georgetown - Mailing Address

Record #: ACT4120
Last Full Update: 17 Nov 2023

Contact Information

Office Phone 905-873-2391
Toll Free Phone 1-888-732-9458
E-Mail info@barthsyndrome.ca
Website www.barthsyndrome.ca
Social Media Facebook Facebook, Instagram Instagram
Contact Form barthsyndrome.ca/contact-us/

Agency Information

Description (Agency)

A volunteer-based, charitable organization that works to find treatments, causes and a cure for Barth syndrome (BTHS).
Legal Status (50) Non Profit
Primary Executive Susan Hone, President
Funding Donations

Description and Service Details

Description (Service)

On-going programs include: 
 
Science and Research

  • participation in helping to fund approved Barth syndrome specific research in Canada and worldwide 

Health Counselling

  • providing affected individuals and their families with information and emotional support to improve quality of life, advance treatments, and find a cure for Barth syndrome 

Health Information Activities

  • awareness program for the medical community and the general public providing information about Barth syndrome, diagnostic alternatives, and treatments to help patients get care unique to Barth syndrome
Hours

Contact for information
Areas Served Canada ; Ontario
Eligibility Individuals and families affected by Barth Syndrome and those supporting the foundation's aims
Application

No application required
Languages English
Fees None

Site Information

Located In Community Georgetown
Address & Map
Georgetown, ON
Mailing Address 162 Guelph St, Suite 115 
Georgetown, ON L7G 5X7
Physical Access Not Applicable - Mailing address

Categories and Classification

HCSD Main Heading Disabilities
HCSD Sub Heading Disability Associations
Service Categories Disease/Disability Information ~ Mitochondrial Diseases ; Health/Disability Related Counselling ~ Mitochondrial Diseases ; Subject Specific Public Awareness/Education ~ Mitochondrial Diseases ; Voluntary Health Organizations ~ Mitochondrial Diseases